MODEL OF CANCER CARE FOR CHILDREN AND ADOLESCENTS
DOI:
https://doi.org/10.18004/anales/2016.049(02)33-042Keywords:
cancer, Comprehensive system of care, My Child Matters, ParaguayAbstract
Comprehensive care for children and adolescents with cancer is one of the major challenges for the public health system in our countries where childhood cancer represents a public health problem and a social problem. Pediatric cancer in Paraguay, a country with limited resources, is a social and public health problem because of the consequences that are inflicted on patients, their families, communities and health systems. A decentralized care model with closer-to-home clinics dedicated to primary care and referrals of children with a potential cancer diagnosis improved access to specialized care and cancer follow-up. These clinics, implemented within the regional hospitals of national health systems, offer sustainable and effective solutions for better access and follow-up care for children with cancer. An analysis of the challenges, success and cost-effectiveness of these regional pediatric cancer clinics for referral and follow-up allows us to suggest an optimal model for such clinics in low-income settings. This model could be replicated for the care of other diseases and in other age groups. We present here the results of the evaluation of the results of the patients of the four regional clinics since its initial implementation.
References
1. The World Bank. Data: Paraguay. 2014. Available at: http://data.worldbank.org/country/paraguay. Accessed August 15, 2014
2. SEER Cancer Statistic Review(CSR) 1975-2012
3. Paraguay perfil población 2011. Dirección General de Encuestas Estadísticas y Censos (DGEEC/STP)
4. GLOBOCAN 2012: Estimated Cancer Incidence, Mortality and Prevalence Worldwide in 2012: Paraguay. Disponible en: http://globocan.iarc.fr.
5. Samudio A, Figueredo D, et. al. Estrategias para prevenir el abandono de tratamiento en niños con cáncer en un país en vías de desarrollo. Pediatr. (Asunción), Vol. 40; N° 2; Agosto 2013
6. Samudio A, Figueredo D, et. al. Programa de cáncer en la Infancia y adolescencia. Tuguy. 2016;1(1):52-58
7. Samudio A, Figueredo D, Lassaletta A, Zelada O, Peris A, Bogado Yinde L, Relyea G, Pérez A, Madero L, Ribeiro R, Masera G, Caniza MA. Building a National Pediatric Cancer Center and Network in Paraguay: Lessons for Addressing Challenges in a Low-income Country. J Pediatr Hematol Oncol. 2015 Jul;37(5):383-90. doi: 10.1097/MPH.0000000000000338. PMID: 25929610
8. Kowalcyk,Jerzy Pritchard-Jones, Kathy Samardakiewicz, Marzena Kowalewska-Bajor,Monika Pomaska, Elzbieta A Górska, Ewa-Jack Fitzgerald, Edel Edel Essiaf, European Standards of Care for Children with Cancer 2009
9. Villasís Keever, Miguel A Rendón Macías, Mario E Escamilla Núñez, Alberto Standards for providing optimal care in pediatric patients with acute lymphoblastic Bol Med Hosp Infant Mex 2012; 69 (3):164-174
10. American Academy of Pediatrics Guidelines for Pediatric Cancer Centers Pediatrics Vol. 113 No. 6 June 2004
11. Nicole M .E. Bradley, Paula D. Robinson, Mark L. Greenberg, Ronald D.Barr, AnneF.Klassen, DPhil6, Y. LilianChan, CorinM.Greenberg-Measuring the Quality of a Childhood Cancer Care Delivery System: Quality Indicator Development Copyright & 2013, International Society for Pharmaco economics and Outcomes Research (ISPOR). Published by Elsevier Inc.
